“Though we used different signed languages, these Chinese Deaf people and I could make ourselves understood; and though we came from different countries, our mutual Deaf culture held us together. By the end of the evening we’d talked about Deaf life in China, and about Chinese politics.” I nodded. “You couldn’t do that in China,” he said. “No hearing person could. So who’s disabled then?”
其实读到这本书里关于唐氏综合征和自闭症的案例,我会觉得其实挺像小猫小狗的,比如和周围人沟通困难,会乱喊乱叫,会搞破坏;但好的时候又特别好,比如唐氏综合征的孩子性格普遍善良可爱,自闭症小孩虽然可能不会表达爱意,但是对熟悉的人还是偶尔会亲吻、拥抱、依偎在身旁,感觉真的很像小猫小狗。所以为什么人类对小猫小狗的情感那么正面,却很难接受举止类似的人类小孩,是因为对人类会有不一样的期待吗…(如果有冒犯的话先道个歉,目前还不是很了解这些病症,而且个体的差异性也很大)
The dangers of seeing disability entirely as illness and not at all as identity are starkly evident in the explanation Dr. Karen McCarron gave for suffocating her three-year-old daughter, Katie, in 2008. She said, “Autism left me hollow. Maybe I could fix her this way, and in heaven she would be complete.” […] Katie McCarron’s paternal grandfather has responded to such rationalizations with indignation. “Some newspapers have reported that this was done to end Katie’s pain; let me assure you that Katie was not in pain,” he wrote. “She was a beautiful, precious and happy little girl. Each day she was showered with love and returned that love with hugs, kisses, and laughter. I am positively revolted when I read quotes that hint at condoning the taking of my granddaughter’s life.”
@xzr_5231 可能同类之间有办法理解呢?书里面提到了这样的组织,经常会办一些聚会
@unagi 这个聚会其实是负能量共享会啦,没什么用的……而且一般是失能者的健全关系人之间的聚会,很大一部分和自闭症患者相似,就像最广为人知的星星的孩子组织里更多的也是对星星的父母家人的“驯化”而已。
很悲观来说,我的观点是健全人没办法用完全不猎奇的眼光看待他们,只能尽可能用不那么猎奇的心态去理解,或者干脆提前杀掉她好了,其实哪怕这世界上忽然建立失能者王国,恐怕也是迪士尼乐园之类的动物园景点吧。
Ps:我的同辈亲戚姐姐是平凡普通有点蠢地长到学龄才在学校被无故刺激成脑瘫儿的,这样看是不是干预的太晚?但她在特校上到初中,到了初中也有人转来((
@xzr_5231 我看到唐氏综合征里也有智商高的,能独立生活的。为了避风险提前流产倒是可以,但那现在还活着的或者父母因为不知情生下的怎么办..我觉得应该多给大众接触这些人的机会,大部分的恐惧应该都是源于不了解..有那种混合的学校
刚查了一下唐氏综合征和脑瘫也不是一回事,脑瘫主要是躯体上的问题,智力问题不是很严重。
@unagi 啊,所有的解决途径都是祛魅的,但这也太理想了uu👀就不说人权普低的东亚,就连北欧国家的落地无障碍化目前也只普及到躯体障碍啊👀
@unagi 但其实也只是表雷同啊,和恐怖谷又不太一样,如果光是浅显了讲的话就太不人道了,哪怕是脑瘫儿也会感到痛苦的,我家人曾提过她会在半夜喘着哭音在客厅一阵一阵徘徊,虽然这样说显得特别恐怖片,但实际上那种没办法表达出来的痛苦比恐怖片更痛苦吧