“Though we used different signed languages, these Chinese Deaf people and I could make ourselves understood; and though we came from different countries, our mutual Deaf culture held us together. By the end of the evening we’d talked about Deaf life in China, and about Chinese politics.” I nodded. “You couldn’t do that in China,” he said. “No hearing person could. So who’s disabled then?”

#FarFromTheTree #读书

其实读到这本书里关于唐氏综合征和自闭症的案例，我会觉得其实挺像小猫小狗的，比如和周围人沟通困难，会乱喊乱叫，会搞破坏；但好的时候又特别好，比如唐氏综合征的孩子性格普遍善良可爱，自闭症小孩虽然可能不会表达爱意，但是对熟悉的人还是偶尔会亲吻、拥抱、依偎在身旁，感觉真的很像小猫小狗。所以为什么人类对小猫小狗的情感那么正面，却很难接受举止类似的人类小孩，是因为对人类会有不一样的期待吗…（如果有冒犯的话先道个歉，目前还不是很了解这些病症，而且个体的差异性也很大​​）

The dangers of seeing disability entirely as illness and not at all as identity are starkly evident in the explanation Dr. Karen McCarron gave for suffocating her three-year-old daughter, Katie, in 2008. She said, “Autism left me hollow. Maybe I could fix her this way, and in heaven she would be complete.” […] Katie McCarron’s paternal grandfather has responded to such rationalizations with indignation. “Some newspapers have reported that this was done to end Katie’s pain; let me assure you that Katie was not in pain,” he wrote. “She was a beautiful, precious and happy little girl. Each day she was showered with love and returned that love with hugs, kisses, and laughter. I am positively revolted when I read quotes that hint at condoning the taking of my granddaughter’s life.”

可能这本书里写的有钱人偏多，这里有非常多正面积极的例子，给我一种“我能接受我的小孩是这个样子”的感觉。书里谈到很多父母做产检的时候发现小孩有缺陷，很纠结到底要不要打掉。我看了里面各种讨论之后心想“如果是我的话应该不会打掉”，然而我根本就没打算要小孩，想过如果意外怀孕的话就立即打掉？？
这又是什么矛盾认知…能接受病症小孩不接受普通小孩？

@unagi 那你意外怀孕的小孩是生病小孩你会留下吗？

@ChuckL 我现在只能靠想象，如果真怀孕了那一系列激素应该会影响我的抉择…
反正我觉得我现在是没有能力养小孩的，但也许政府的帮扶会还不错呢​​