可能这本书里写的有钱人偏多,这里有非常多正面积极的例子,给我一种“我能接受我的小孩是这个样子”的感觉。书里谈到很多父母做产检的时候发现小孩有缺陷,很纠结到底要不要打掉。我看了里面各种讨论之后心想“如果是我的话应该不会打掉”,然而我根本就没打算要小孩,想过如果意外怀孕的话就立即打掉??
这又是什么矛盾认知…能接受病症小孩不接受普通小孩?
其实读到这本书里关于唐氏综合征和自闭症的案例,我会觉得其实挺像小猫小狗的,比如和周围人沟通困难,会乱喊乱叫,会搞破坏;但好的时候又特别好,比如唐氏综合征的孩子性格普遍善良可爱,自闭症小孩虽然可能不会表达爱意,但是对熟悉的人还是偶尔会亲吻、拥抱、依偎在身旁,感觉真的很像小猫小狗。所以为什么人类对小猫小狗的情感那么正面,却很难接受举止类似的人类小孩,是因为对人类会有不一样的期待吗…(如果有冒犯的话先道个歉,目前还不是很了解这些病症,而且个体的差异性也很大)
The dangers of seeing disability entirely as illness and not at all as identity are starkly evident in the explanation Dr. Karen McCarron gave for suffocating her three-year-old daughter, Katie, in 2008. She said, “Autism left me hollow. Maybe I could fix her this way, and in heaven she would be complete.” […] Katie McCarron’s paternal grandfather has responded to such rationalizations with indignation. “Some newspapers have reported that this was done to end Katie’s pain; let me assure you that Katie was not in pain,” he wrote. “She was a beautiful, precious and happy little girl. Each day she was showered with love and returned that love with hugs, kisses, and laughter. I am positively revolted when I read quotes that hint at condoning the taking of my granddaughter’s life.”
还有好多案例是知道自己孩子有病之后就去查资料,然后建立了帮扶组织/学校并成为了 president or 找到了帮扶组织/学校并成为了 president…
作者是不是专门去采访 presidents 啊
PS 这一段是关于精神分裂症的
He’s well enough to know that he shouldn’t tell other people the voices are real, but not well enough to believe it himself. […] He and I also discuss a real hurdle he has not overcome, which is that he doesn’t really want to stop listening to them. Even though they scare him, they’ve been friends.”
哎呀,这本书里访问的都是些有钱人
I got the best doctors in the world, I got the best educational people, I got forty hours of treatment a week, which was the most anyone had ever gotten.
Harry, who is not tall, weighed 220 pounds; […] after about six months, he put himself on a diet and started running. […] Kitty said. “Suddenly it dawned on me, why isn’t there a fitness center there?” Kitty raised the money to build one.
“He still thinks that if he acts like he’s normal, he’ll be treated more normally by the world. All it means is that he doesn’t get as much help as he needs.”
某个(我不认得的)男演员害怕自己在演出前忘关手机,就设置了一个即使响了也不会被人发现的铃声。Seth猜是掌声,演员说不对,万一很安静的时候突然响起掌声也很尴尬。揭晓答案是咳嗽声,还是演员亲自录的自己的咳嗽声。 🤣
草草草刚才被我校的模拟诈骗邮件骗到了
https://www.youtube.com/watch?v=DLzxrzFCyOs
说是最好不要给同学分享,但毛象上貌似只有一个已知的我同学。。
嗯好像不讲话而是打字是自闭症常见症状…
怎讲,我也有那种完全没办法开口讲话,一定要打字的时候。也不是说我有自闭症那么严重,但感觉要是没有这样的经历的话就很难理解为什么明明可以讲话却选择不讲…
这本书里的缩写太让我难受了,ASL = American Sign Language, AP = Average People, DS = Down Syndrom, FC = Facilitated Communication, EI = Early Intervention… 我明白你们业内人士这么叫方便,但是,呃,好难受,好讨厌缩写